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Brittany Galante
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Contact Brittany

Brittany Galante is a genetic counselor and researcher who was born with hypermobile Ehlers Danlos syndrome (hEDS), a connective tissue disorder. After conducting her master’s thesis on hEDS diagnostics in healthcare, she became an advocate within the EDS community.

Her journey of advocacy and research eventually led her to the Rare Advocacy Movement (RAM). Brittany serves as the chief interdepartmental communications advisor at RAM, a role that gives her the opportunity to support not only her local rare disease community, but the global community as well.

Her goal with RAM is to create a healthcare infrastructure that gives any person living with a rare disease access to efficient and accurate diagnostic services. By helping to build this infrastructure, she is paving a new path for genetic counselors worldwide. Currently, she is conducting another research study on hEDS diagnostics in healthcare, while also serving as a mentor for a graduate student’s separate research study centered on hEDS healthcare after diagnosis.


In her free time, Brittany enjoys both painting and baking.

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The Rare Advocacy Movement (RAM) is the first sustainable rare disease community-based network designed to unite and empower people with lived rare disease experiences.  RAM is dedicated to protecting the fair market value of the community's perspectives, insights and experiences (PIE). All RAM members vow to always act in the best interest of the global rare disease community by abiding by the Code of Conduct for Membership. Violations of the Code of Conduct for Membership shall result in resignation from the RAM membership via majority vote. For those not yet ready for RAM Membership, partnerships and trusted stakeholder options are available through Rare360.

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