RARE

ADVOCACY

MOVEMENT

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Thank you so much for your interest in connecting with us! We acknowledge receipt of your message and will respond with follow-ups on a case-by-case basis. Please be patient as we are receiving a large volume of inquiries. Thank you for taking the time to reach out and we hope to be in touch soon.

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The Rare Advocacy Movement (RAM) is the first sustainable rare disease community-based network designed to unite and empower people with lived rare disease experiences. RAM is dedicated to protecting the fair market value of the community's perspectives, insights and experiences (PIE). All RAM members vow to always act in the best interest of the global rare disease community by abiding by the Code of Conduct for Membership. Violations of the Code of Conduct for Membership shall result in resignation from the RAM membership via majority vote. For those not yet ready for RAM Membership, partnerships and trusted stakeholder options are available through Rare360.

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