We are Rare

LIVING RARE
Perspectives, Insights & Experiences (PIE)

WE ARE RARE.

The Rare360 Editorial Team

May 31, 20234 min read

Living Rare

Rare Diseases, Mental Health Issues, and What We Can Do About It

The Rare360 Editorial Team

May 30, 20237 min read

Thought Leaders

Thought Leadership in Mental Health For Rare Diseases

Jessica Wong

Jan 31, 20235 min read

Living Rare

Helping People Diagnosed with a Rare Disease Overcome Mental Health Challenges

Neuromuscular Disease Foundation

Nov 18, 20227 min read

Diversity, Equity, Inclusion (DEI)

Accessibility

Maria Arini Lopez, PT, DPT, CSCS, CIMT, CMTPT

Oct 31, 20223 min read

Rare Disease Awareness

Dysautonomia and Gastroparesis

The Propionic Acidemia Foundation (PAF)

Oct 26, 20224 min read

Adults Living Rare

The Care Notebook: An important tool for individuals, their families, caregivers, and medical team

Maria Arini Lopez, PT, DPT, CSCS, CIMT, CMTPT

Oct 24, 20222 min read

Living Rare

Thermoregulation Issues in Dysautonomia

Maria Arini Lopez, PT, DPT, CSCS, CIMT, CMTPT

Oct 17, 20224 min read

Living Rare

POTS: What is It?

Maria Arini Lopez, PT, DPT, CSCS, CIMT, CMTPT

Oct 10, 20222 min read

Living Rare

Dysautonomia: What is It?

Maria Arini Lopez, PT, DPT, CSCS, CIMT, CMTPT

Sep 30, 20223 min read

Adults Living Rare

Save Your Spoons!

Maria Arini Lopez, PT, DPT, CSCS, CIMT, CMTPT

Sep 21, 20222 min read

Adults Living Rare

High Pressure Headaches

Maria Arini Lopez, PT, DPT, CSCS, CIMT, CMTPT

Sep 20, 20224 min read

Living Rare

Pressure Headaches

Maria Arini Lopez, PT, DPT, CSCS, CIMT, CMTPT

Sep 12, 20224 min read

Living Rare

Why Does Pain Increase with Weather Changes?

Aston Martinez

Aug 19, 20225 min read

Living Rare

The Impact of Healthcare Pricing & Transparency on the Rare Disease Community

Aston Martinez

Jul 29, 202215 min read

Emergency Preparedness: Creating a Disability-Inclusive Emergency Plan

Neuromuscular Disease Foundation

Jul 25, 20224 min read

Living Rare

Media Messaging on Inter-abled Relationships: What Are We Saying to The Disabled Community?

Aston Martinez

Jul 21, 20229 min read

Diversity, Equity, Inclusion (DEI)

The Specious Reason Behind the Lack of Diversity, Equity, and Inclusion Training in the Workplace

Aston Martinez

Jun 27, 20225 min read

Living Rare

The Disability Spectrum & Why It Matters

Maria Arini Lopez, PT, DPT, CSCS, CIMT, CMTPT

Jun 17, 20224 min read

Living Rare

Tension-Type Headaches

Maria Arini Lopez, PT, DPT, CSCS, CIMT, CMTPT

Jun 10, 20226 min read

Living Rare

Food Allergies Versus Sensitivities Versus Intolerances: How to Know the Difference

Neuromuscular Disease Foundation

Jun 1, 20224 min read

Living Rare

Consciously Shifting the Dynamic of Patient Storytelling

Maria Arini Lopez, PT, DPT, CSCS, CIMT, CMTPT

May 26, 20226 min read

Living Rare

Applying for Jobs with a Disability

Aston Martinez

May 24, 20228 min read

Living Rare

The Harms of Being Labeled a ‘Difficult’ Patient

Maria Arini Lopez, PT, DPT, CSCS, CIMT, CMTPT

May 20, 20226 min read

Living Rare

LIVING RARE Perspectives, Insights & Experiences (PIE)

Rare Diseases, Mental Health Issues, and What We Can Do About It

Thought Leadership in Mental Health For Rare Diseases

Helping People Diagnosed with a Rare Disease Overcome Mental Health Challenges

Accessibility

Dysautonomia and Gastroparesis

The Care Notebook: An important tool for individuals, their families, caregivers, and medical team

Thermoregulation Issues in Dysautonomia

POTS: What is It?

Dysautonomia: What is It?

Save Your Spoons!

High Pressure Headaches

Pressure Headaches

Why Does Pain Increase with Weather Changes?

The Impact of Healthcare Pricing & Transparency on the Rare Disease Community

Emergency Preparedness: Creating a Disability-Inclusive Emergency Plan

Media Messaging on Inter-abled Relationships: What Are We Saying to The Disabled Community?

The Specious Reason Behind the Lack of Diversity, Equity, and Inclusion Training in the Workplace

The Disability Spectrum & Why It Matters

Tension-Type Headaches

Food Allergies Versus Sensitivities Versus Intolerances: How to Know the Difference

Consciously Shifting the Dynamic of Patient Storytelling

Applying for Jobs with a Disability

The Harms of Being Labeled a ‘Difficult’ Patient

Where the Body and Mind Intersect

LIVING RARE
Perspectives, Insights & Experiences (PIE)