Neuromuscular Disease Foundation
Accessibility
Where are we still falling short? Where can accommodations for disabled persons be improved? November 18, 2022 “Staff were huffing and...
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LIVING RARE
Perspectives, Insights & Experiences (PIE)
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Aston Martinez
Jul 21, 20229 min read
The Specious Reason Behind the Lack of Diversity, Equity, and Inclusion Training in the Workplace
The Specious Reason Behind the Lack of Diversity, Equity, and Inclusion Training in the Workplace
"Our Lives Matter"
Feb 28, 20215 min read
"We CARE About Rare Lives"
"We CARE About Rare Lives" is the community-focused response to the "Our Lives Matter" global rare disease call-to-action.
"Our Lives Matter"
Jan 25, 202111 min read
In response to the RARE-X DEIP Announcement
An important message on behalf of the rare disease community of color written by the “Our Lives Matter” Diversity, Equity, Inclusion (OLM DE
Adults Living Rare
Mar 5, 20201 min read
The first Community-based stakeholder collaboration zone
This event will be hosting the very first Community-Based Collaboration Zone, a two hour event curated by the Rare Advocacy Movement.
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