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LIVING RARE
Perspectives, Insights & Experiences (PIE)
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"Our Lives Matter"
Feb 28, 20215 min read
"We CARE About Rare Lives"
"We CARE About Rare Lives" is the community-focused response to the "Our Lives Matter" global rare disease call-to-action.
Adults Living Rare
Dec 15, 20205 min read
Great news for Rett syndrome and other similar rare diseases on the autism spectrum
After receiving the disappointing news that GW Pharmaceuticals has made the difficult decision to discontinue their cannabidiol study in mid
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