Neuromuscular Disease Foundation
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Where are we still falling short? Where can accommodations for disabled persons be improved? November 18, 2022 “Staff were huffing and...
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LIVING RARE
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Maria Arini Lopez, PT, DPT, CSCS, CIMT, CMTPT
Oct 31, 20223 min read
Dysautonomia and Gastroparesis
Gastroparesis is a condition caused by the slowed or stopped movement or contraction of your stomach muscles...
The Propionic Acidemia Foundation (PAF)
Oct 26, 20224 min read
The Care Notebook: An important tool for individuals, their families, caregivers, and medical team
October 26, 2022 Those with rare and complex disorders and their caregivers hold a crucial role in their care team. They often have to...
Maria Arini Lopez, PT, DPT, CSCS, CIMT, CMTPT
Oct 24, 20222 min read
Thermoregulation Issues in Dysautonomia
October 24, 2022 - Written By: Maria Arini Lopez, PT, DPT Symptoms of dysautonomia are caused due to dysfunction within the autonomic...
Maria Arini Lopez, PT, DPT, CSCS, CIMT, CMTPT
Oct 10, 20222 min read
Dysautonomia: What is It?
October is Dysautonomia Awareness Month, so my blogs for this month will focus on difference symptoms of and supportive treatments for ...
Maria Arini Lopez, PT, DPT, CSCS, CIMT, CMTPT
Sep 30, 20223 min read
Save Your Spoons!
An Energy Conservation Strategy for People Living with Chronic Illnesses
Maria Arini Lopez, PT, DPT, CSCS, CIMT, CMTPT
Sep 21, 20222 min read
High Pressure Headaches
What is the difference between low pressure headaches and high pressure headaches?
Maria Arini Lopez, PT, DPT, CSCS, CIMT, CMTPT
Sep 20, 20224 min read
Pressure Headaches
CSF surrounds the brain and spinal cord and is contained within the meninges...
Maria Arini Lopez, PT, DPT, CSCS, CIMT, CMTPT
Sep 12, 20224 min read
Why Does Pain Increase with Weather Changes?
September 12, 2022 - Written By: Maria Arini Lopez, PT, DPT Do you ever feel that your joints, bones, muscles, and/or head start to...
Aston Martinez
Aug 19, 20225 min read
The Impact of Healthcare Pricing & Transparency on the Rare Disease Community
Imagine this: you’ve just arrived back home from running errands and decide to check the mail, whereupon you find that you’ve received an ou
Neuromuscular Disease Foundation
Jul 25, 20224 min read
Media Messaging on Inter-abled Relationships: What Are We Saying to The Disabled Community?
The trending Netflix show “Love on The Spectrum” features Autistic twenty-somethings who are navigating the dating world in search of ...
Aston Martinez
Jul 21, 20229 min read
The Specious Reason Behind the Lack of Diversity, Equity, and Inclusion Training in the Workplace
The Specious Reason Behind the Lack of Diversity, Equity, and Inclusion Training in the Workplace
Aston Martinez
Jun 27, 20225 min read
The Disability Spectrum & Why It Matters
The Disability Spectrum & Why It Matters
Maria Arini Lopez, PT, DPT, CSCS, CIMT, CMTPT
Jun 17, 20224 min read
Tension-Type Headaches
Headaches can be debilitating, making focus and concentration at school or work incredibly difficult. They are one of the top health reasons
Neuromuscular Disease Foundation
Jun 1, 20224 min read
Consciously Shifting the Dynamic of Patient Storytelling
The Neuromuscular Disease Foundation and RAM Challenge You to Change the Way You Tell Patients’ Stories
Maria Arini Lopez, PT, DPT, CSCS, CIMT, CMTPT
May 26, 20226 min read
Applying for Jobs with a Disability
May 27, 2022 - Written By: Maria Arini Lopez, PT, DPT Under the best of circumstances, applying for a new job is stressful and...
Aston Martinez
May 24, 20228 min read
The Harms of Being Labeled a ‘Difficult’ Patient
The Harms of Being Labeled a ‘Difficult’ Patient
Maria Arini Lopez, PT, DPT, CSCS, CIMT, CMTPT
May 20, 20226 min read
Where the Body and Mind Intersect
How does a rare disease diagnosis, chronic illness, or disability affect a person's mental health?
Aston Martinez
May 9, 20227 min read
Dating & Healthy Relationships for People with Disabilities
Many people mistakenly believe that people with disabilities don’t desire sex and relationships, or that they are entirely unable to do so.
Aston Martinez
May 2, 20228 min read
Value Your Rare
As members of the rare disease community, it's easy to feel isolated, unheard, invisible and exploited...
Maria Arini Lopez, PT, DPT, CSCS, CIMT, CMTPT
Apr 8, 20226 min read
Tips and Tricks to Improve your Sleep 😴
It is a vicious cycle—experiencing complete and utter exhaustion every waking hour of the day, yet when you crawl into bed at night...
Adults Living Rare
Dec 15, 20205 min read
Great news for Rett syndrome and other similar rare diseases on the autism spectrum
After receiving the disappointing news that GW Pharmaceuticals has made the difficult decision to discontinue their cannabidiol study in mid
Adults Living Rare
Mar 5, 20201 min read
The first Community-based stakeholder collaboration zone
This event will be hosting the very first Community-Based Collaboration Zone, a two hour event curated by the Rare Advocacy Movement.
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