Neuromuscular Disease Foundation
Accessibility
Where are we still falling short? Where can accommodations for disabled persons be improved? November 18, 2022 “Staff were huffing and...
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LIVING RARE
Perspectives, Insights & Experiences (PIE)
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Aston Martinez
Jul 21, 20229 min read
The Specious Reason Behind the Lack of Diversity, Equity, and Inclusion Training in the Workplace
The Specious Reason Behind the Lack of Diversity, Equity, and Inclusion Training in the Workplace
Aston Martinez
Jun 27, 20225 min read
The Disability Spectrum & Why It Matters
The Disability Spectrum & Why It Matters
Maria Arini Lopez, PT, DPT, CSCS, CIMT, CMTPT
May 26, 20226 min read
Applying for Jobs with a Disability
May 27, 2022 - Written By: Maria Arini Lopez, PT, DPT Under the best of circumstances, applying for a new job is stressful and...
Aston Martinez
May 2, 20228 min read
Value Your Rare
As members of the rare disease community, it's easy to feel isolated, unheard, invisible and exploited...
"Our Lives Matter"
Feb 28, 20215 min read
"We CARE About Rare Lives"
"We CARE About Rare Lives" is the community-focused response to the "Our Lives Matter" global rare disease call-to-action.
"Our Lives Matter"
Jan 25, 202111 min read
In response to the RARE-X DEIP Announcement
An important message on behalf of the rare disease community of color written by the “Our Lives Matter” Diversity, Equity, Inclusion (OLM DE
Adults Living Rare
Mar 5, 20201 min read
The first Community-based stakeholder collaboration zone
This event will be hosting the very first Community-Based Collaboration Zone, a two hour event curated by the Rare Advocacy Movement.
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