Where are we still falling short? Where can accommodations for disabled persons be improved? November 18, 2022 “Staff were huffing and...

October 24, 2022 - Written By: Maria Arini Lopez, PT, DPT Symptoms of dysautonomia are caused due to dysfunction within the autonomic...

POTS is one of the many possible symptoms of dysautonomia, a disorder affecting the autonomic nervous system (ANS).

October is Dysautonomia Awareness Month, so my blogs for this month will focus on difference symptoms of and supportive treatments for ...

An Energy Conservation Strategy for People Living with Chronic Illnesses

What is the difference between low pressure headaches and high pressure headaches?

September 12, 2022 - Written By: Maria Arini Lopez, PT, DPT Do you ever feel that your joints, bones, muscles, and/or head start to...

The trending Netflix show “Love on The Spectrum” features Autistic twenty-somethings who are navigating the dating world in search of ...

The Disability Spectrum & Why It Matters

Headaches can be debilitating, making focus and concentration at school or work incredibly difficult. They are one of the top health reasons

The Neuromuscular Disease Foundation and RAM Challenge You to Change the Way You Tell Patients’ Stories

May 27, 2022 - Written By: Maria Arini Lopez, PT, DPT Under the best of circumstances, applying for a new job is stressful and...

The Harms of Being Labeled a ‘Difficult’ Patient

How does a rare disease diagnosis, chronic illness, or disability affect a person's mental health?

For many people, it doesn’t come as much of a surprise that any online technology carries massive risks to our privacy...

What happens when you can't participate in a clinical trial for whatever reason? Expanded Access happens...

Many people mistakenly believe that people with disabilities don’t desire sex and relationships, or that they are entirely unable to do so.

Have you ever had a massage where the therapist found an especially tender area in the muscle that felt like a knot?

As members of the rare disease community, it's easy to feel isolated, unheard, invisible and exploited...

This genome sequence will undoubtedly serve as a firm foundation for the development of effective treatments and potential cures for over 56

About 3 years ago, I went to my eye doctor for a routine exam. She asked me if I had any concerning symptoms that had started since our ...

It is a vicious cycle—experiencing complete and utter exhaustion every waking hour of the day, yet when you crawl into bed at night...

The morning of February 24th has changed the life of every Ukrainian forever.

"We CARE About Rare Lives" is the community-focused response to the "Our Lives Matter" global rare disease call-to-action.