Neuromuscular Disease Foundation
Accessibility
Where are we still falling short? Where can accommodations for disabled persons be improved? November 18, 2022 “Staff were huffing and...
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LIVING RARE
Perspectives, Insights & Experiences (PIE)
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Maria Arini Lopez, PT, DPT, CSCS, CIMT, CMTPT
May 13, 20223 min read
What are Expanded Access Programs?
What happens when you can't participate in a clinical trial for whatever reason? Expanded Access happens...
Maria Arini Lopez, PT, DPT, CSCS, CIMT, CMTPT
Apr 29, 20223 min read
Human Genome Now Practically Fully Sequenced: What does this mean for the Rare Disease Community?
This genome sequence will undoubtedly serve as a firm foundation for the development of effective treatments and potential cures for over 56
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